Welcome to Halfman, Half Book, I am Paul Cheney. This is the first stop on the 10th Anniversary Blog Tour for the Wellcome Book Prize. Launched in 2009, the prize celebrates the best new books that engage with an aspect of medicine, health or illness, showcasing the breadth and depth of our encounters with medicine through exceptional works of literature. These exceptional works of fiction and non-fiction illuminate the many ways that health, medicine and illness touch our lives. Over the last decade, the prize has recognised an eclectic variety of titles from novels to memoirs to popular science. In 2019, the prize will celebrate this legacy and this extraordinary genre of books that add new meaning to life, death and everything in between.
Today I am going to be highlighting one of the books from 2009, the first year that the prize ran, Tormented Hope. First, though I will be talking about, Illness by Havi Carel.
What is illness? Is it a physiological dysfunction, a social label, or a way of experiencing the world? How do the physical, social, and emotional worlds of a person change when they become ill? Can there be well-being within illness?
In this remarkable and thought-provoking book, Havi Carel explores these questions by weaving together the personal story of her own illness with insights and reflections drawn from her work as a philosopher. Carel’s fresh approach to illness raises some uncomfortable questions about how we all – whether healthcare professionals or not – view the ill, challenging us to become more thoughtful. Illness unravels the tension between the universality of illness and its intensely private, often lonely, nature. It offers a new way of looking at a matter that affects every one of us.
Revised and updated throughout, the third edition of this groundbreaking volume includes a new chapter on organ transplantation. Illness: The Cry of the Flesh will prove essential reading to those studying philosophy, medical ethics, and medical anthropology, as well as those in the healthcare and medical professions. It will also be of interest to individuals who live with illness, and their friends and families.
However, there are those that have long term, debilitating and life-shortening illnesses that affect them and their families in a multitude of ways. How does society as a whole consider those that are ill and how should we as individuals treat those that are ill.
Havi Carel is well placed to consider the impact of illness on an individual and the wider implications in society in her position as Professor of Philosophy at Bristol and as a long term sufferer of Lymphangioleiomyomatosis (LAM). This is a rare, progressive and systemic disease that typically results in cystic lung destruction and affects younger women.
Using the intimate knowledge of her own illness from when she began to realise that there was something wrong in 2004, learning about the illness with her father there, to details on the medical treatments that she needed. She is open about how some friends, family and medical practitioners have treated her since the diagnosis and when their care has succeeded and when it hasn’t. With the finely honed gaze of a philosopher and through the prism of phenomenology she is best placed to understand how and why people do the things that they do.
It is quite a profound book in lots of ways. Carel explores from a very personal perspective the feeling and emotions that come with severe and long term debilitating illness and gets to the very crux of the matter on how we need to treat those in those long term illnesses. Some of the more esoteric philosophy I didn’t really get the first time, so it will be worth a second read again on those sections. In my opinion, this is a brilliant companion volume to the book by Kathryn Mannix that was shortlisted last year, With The End In Mind, that explores different and more empathetic ways to treat people as they reach the end of their life.
Another book on the shortlist in 2009 was, Tormented Hope.
In this, Brian Dillon looks at nine prominent hypochondriacs – James Boswell, Charlotte Brontë, Charles Darwin, Florence Nightingale, Daniel Paul Schreber, Alice James, Marcel Proust, Glenn Gould and Andy Warhol – and what their lives tell us about the way the mind works with, and against, the body. His findings are stimulating and surprising, and the stories he tells are often moving, sometimes hilarious, and always gripping. With a new afterword on Michael Jackson.
Brian Dillon’s first book, In the Dark Room, won the Irish Book Award for Non-fiction in 2006. He lives in Canterbury.
Please do come back later for a review of this book and thank you for stopping by today
Do find the other blogs and book lovers on social media as they talk about the books that have made the shortlists over the past decades
Find out more about the prize and the Wellcome Trust here: wellcomebookprize.org
Follow the hashtag too: #WBP2019
WELLCOME BOOK PRIZE 2019
The longlist for the prize will be announced in February, the shortlist in march and the winner announced in April. Really looking forward to seeing what makes it on this year.
Elif Shafak, the award-winning author, is chair of the Wellcome Book Prize 2019 and is joined on the panel by Kevin Fong, consultant anaesthetist at University College London Hospitals; Viv Groskop, writer, broadcaster and stand-up comedian; Jon Day, writer, critic, and academic; and Rick Edwards, broadcaster and author.